Changing the future of ovarian cancer care We want people to be diagnosed more quickly and have more treatment options available to them. If we can achieve this, people will live longer and fuller lives following an ovarian cancer diagnosis. All our work is centred on patient experience. They are the experts of their own experience, their voices are powerful. We know when patient voices are amplified and listened to, things can change more quickly and more effectively. On this page you can read about how we work to change ovarian cancer care, some of the projects we are undertaking right now and how you can use your voice to change the future for others diagnosed with ovarian cancer. What does Ovacome get involved in? Research We partner with researchers or undertake our own research to help policy makers and clinicians understand the experience of people affected by the disease. Clinical Trials Every year we work with around 15 clinicians or researchers to improve the design of their trial. We also help recruit people to trials via our support line and other communication channels. Policy change We deliver training and education to around 2,000 clinicians and policy makers every year. Focusing on amplifying the experience of patients, means we can explain how treatment pathways can and should be improved. Current projects Here are some of the projects we are currently involved in. Where there's a link below, follow for more information. We'll be updating this page before the end of 2025 with more detailed information about each project. Can shopping receipts predict ovarian cancer? We've partnered with Dr Elizabeth Dolan, Researcher at N/LAB at the University of Nottingham who is carrying out a study to see if shopping habits can be connected to, or even predict an ovarian cancer diagnosis. Read more Could a new test speed up ovarian cancer diagnosis? In the West Midlands we are working with researchers to see if a new test, called 'ROMA', can detect ovarian cancer. Read more Campaign successes Changing policy Revised guidance to improve patient care for those diagnosed with granulosa cell tumours Working collaboratively with UK GCT Survivor Sisters, Ovacome published research which changed the British Gynaecological Cancer Society’s guidance for follow up and monitoring of GCT. This work won Inspiring Collaboration Award at the 2024 World Ovarian Cancer Coalitions Impact Awards Read more Changing policy Same sex interpreters for anyone with English as a second language Through our health inequalities work we have changed the policies in some NHS trusts. Patients in these trusts are now given a same sex interpreter when available and the assumption is made that if they are attending with relatives that an interpreter will still be required – instead of asking relatives to interpret. Enhancing clinical trials Patient voice represented in creation of tissue bank A group of patients helped researchers understand how to set up a tissue bank and explain it to future patients. This gave real power to patients and helped the researchers understand what questions participants would have. How can I help? Become a member As a member, you’ll be kept up to date with all of our work to improve diagnosis and treatment for people with ovarian cancer. Membership is free Join the Ovacome community Get in touch Want to tell us about your experiences? Contact [email protected] if you’ve got something you’d like to highlight. Donate We receive no government funding and our work is only possible thanks to your generosity. Donate today so we can continue this work. Donate Manage Cookie Preferences